Splendid Mayhem: Adaptive Equipment

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Sunday, January 4, 2009

I ended up ordering the Easie Eaters. I found them here for cheap. (I searched several sites to find the lowest price) And shipping was only 5.00!

Anelys posted a comment about Myself Belts. Logen's nickname is Mr Fashion- so when I searched this (also at Adaptive Child, but a wider selection available at MB) I thought it was a great idea for him. And, an awesome OT workout! We will have to order this for him. I think he will LOVE it and with minimal (to no) help he can do it all by himself!! (Which, is a great self esteem boost!)

Curved Utensils

I am searching for the 'perfect' set of utensils for Logen. We've tried the weighted fork/spoon- but I think he needs something with an angle. The children's sets I have found are all plastic which concerns me b/c Logen prefers to eat with a metal fork at home. He will actually go to the silverware drawer and get a metal fork if we give him a plastic one. We want him to be successful at eating on his own, so finding silverware he can use is very important.
Has anybody used these? What did you think about them? Are there any out there that you suggest?

EasieEaters™ Curved Utensils