Information About Mitochondrial Disease

Since I seem to have some "down time", I have added information in the side bars about Logen's "main" disease- Mitochondrial Disease. I plan on posting about What Mito is, etc soon. Just wanted to point out the links on the side.

Mitochondrial Disease

Ok... We got some of the results from Atlanta back this week!

It's very complex. I'm in the midst of doing a million things & can't quite explain it all now.

Logen has a Mitochondrial Disease. He also has type 2 muscle fiber atrophy. He will start a mitochondrial "cocktail" as soon as we can find a pharamacy to compound it. There are some financial concerns, the docs say we will have to fight insurance (the doc's office is very willing to write them a letter and do what they can though) and medicaid won't cover this. As far as a specific Mito Disease, we are still waiting on all of those to come in. It could be many months. And, we may never know from what they said. We just know his mitochondria do not function normally. He's "highly probable" to have complex 1 and complex 3- and that's about as much info as we have. It could take nearly 2 years for the meds to kick in b/c they have to get into the muscle. And, there is a chance they won't do anything. As far as prognosis, we don't have one right now.

We are waiting for a big list of precautions from the doc, but were given a few to start with. Things like he can't have a certain type of anesthesia, he can't fast for long periods, no over heating, can't be around people with the flu (b/c it could take him down harder and longer), he may need to be hospitalized for even minor infections b/c of hydration and monitoring.

Please continue to pray for us. Thanks.

St Louis Bound (Again!) & Logen Update

Hey All! Hope you all are doing well... :)

We are on the road to St Louis (again!). Logen has 2 appointments on Monday. He sees the Neuro and Epilepsy Doc this trip.

In the past 2 weeks to 3 weeks he's started having seizures again, so we made a med increase. He's also been having some "quirky" little jerking movements, increased drooling, and just some random things I don't like. So, I was glad it started around the time for our appointments. (If it had to start at all...)

Logen was moved to a new school this year (b/c of injuries last year and lack of progress). So far, so good. He seems to be doing very well. He appears to be happy about staying there and I don't get that "yuck" feeling I got when he was at "the other place".

I will update after our appt! Please pray for good news. Our 3 month post-surgery date is Oct 2, so we *should* be getting something soon! I am getting sooooo very anxious.

Please pray for this family.

We've had some generous people in our lives and we continue to be greatful. I am probably one of the people that sees it the least, but I know the Lord keeps blessing Logen and our family. I am posting parts of the following obituary b/c this family is asking that in lieu of flowers, donations be made to Logen's Medical Fund. The thing is, this family has never met our precious Logen. Connie works for a company that Adam has delievered to frequently over the last 5 years. She has asked about Logen and stayed informed through Adam. So, it just goes to show- there are some amazing people out there. So, please- keep this family in your prayers. What a blessing they are to us.

Duane, 63, died Friday, July 17, 2009. He was born Jan. 2, 1946, in Denver, Colo.
He served in the U.S. Army and was a Vietnam veteran. He worked for many years as a retail manager and also as an artist. He married Connie on Aug. 8, 1989, in Ruidoso, N.M. The couple moved [here] in 2000. He was a member of the National Rifle Association, the American Legion, and the Central United Methodist Church.
He was preceded in death by a son and a brother.
Survivors include wife, Connie; a son, James; a daughter, Susan; a stepson, James; his mother, Aileen; two half brothers, Mack and his wife Jan , and Scott and his wife Dianna ; a sister, Donna; four grandchildren; and a greatgrandchild.

A memorial service will be held at 11 a.m. Saturday, July 25, at the Central United Methodist Church.

Arrangements are by the {county} Memorial Park Funeral Home of [town].


In lieu of flowers, memorials may be made to the Logen D. Medical Fund, in care of Arvest Bank.

Logen's Blog Is Up!

There's not much there... but I'm slowly working on it! I forgot how much work was involved in the blog start up. I can't remember how to do any of the basic set up stuff!

www.logend.blogspot.com

Logen Man Update

Logen is doing pretty good. He's not limping very much anymore. He will beable to swim (and resume pool therapy- his favorite form of therapy!) by the end of this week. He pulled his bandage off last week and his surgical site was still a little bloody and swollen so I just put a bandaide back on it. (There's a facebook picture on my mobile uploads).

We have seen an increase in seizures in the last month.

It's re-eval time again (OT). Speech was in May. PT is soon as well. On our IEP no progress was made during the school year. He has lost skills in OT as well as Speech in our private therapy evals. Just asking for prayers here. We are also strongly considering a change in schools. This was discussed in the last IEP meeting due to several injuries (quite a few unexplained ones) Logen came home with. All of this is another post in itself.

We won't have results from the skin or muscle biops for about 3 months. They will send the CSF results and the RMR results at the same time.

Dr. Shoffner sent me the clinic notes from the appointment and I will post the "important" ones soon.

I'm playing catch up on homework now (well, avoiding it actually).

Thank you all for the continued prayers.

Confirmed!

The Surgeon has confirmed our spot next week! So, WE ARE ON for Atlanta and seeing Dr Shoffner! I am thrilled ya'll! I can't wait for results. I know, 3 months away... but- maybe some answers, FINALLY!

I was on the phone all day yesterday trying to contact people regarding flights, etc. This is really starting to stress me out :-O However, I am sooooo ready to have this done!

I have started Logen his own blog... there is nothing on it yet. I hope to copy over any post regarding him from my blog to his by tomorrow. I will also update along our trip. The main purpose of his blog is for the companies that have asked for more information before they will make donations. I'm not sure how I will keep up with all of these blogs ;)

At this point, I am working with Angel Flights trying to get Logen and I out there free. They won't fly more than I passenger with the patient. And, since it's a holiday weekend next week- it's looking doubtful. But, worth a try. If not, I'm not sure what we will do, as the flight prices keep going up.

Say prayers for our sanity! I called lotsa family members last night for a very detailed family history! Holy Smokes! I didn't know how many heart conditions we had. And "child birth" problems. I got my issues from both sides of my family. I feel blessed to have been able to have 2 kids after hearing it.

ATLANTA HERE WE COME! :)

Atlanta Appt (Dr Shoffner) Scheduled!

Oh boy! We've been so stinkin' busy. I have this week and next week left of 3 classes a day, then 5 weeks of just 2 classes. That will feel like a breeze after this craziness! :p

Sooo... His appt with Dr Shoffner (the Neurogenetics specialist) has been scheduled for July 1 and 2. The only hold up at this point is they can't confirm until about Friday. Which will leave me about 3 days to book flights, rental car, and a hotel AND get to Atlanta! Kinda, just a little bit, Stressful!

Where the funding for said things will come from it beyond me. We've been slowly gathering stuff, but I haven't had a break in school long enough to pull a fundraiser together.

The Doc has reviewed just half of his records and defininately wants to see Logen. Here is what we will be looking at (the list could change):
Diagnostic Testing for Mitochondrial Disease
* Blood for mtDNA (PCR and Southern)
* Blood and CSF for Lactate and Pyruvate, or Brain MR Spectroscopy (we are doing the spinal tap at this point)
* Urine Organic Acids (by GC/MS)
* Plasma and Urine Amino Acids Blood and Urine Carnitine
* Brain MRI (He's had 2. 1 was abnormal, 1 was normal. You're guess is as good as ours on this)
* Muscle Biopsy (they will be removing a 1 by 1 piece from the top of his leg) and Skin Biopsy, Neuropathology and Electron Microscopy, Mitochondrial Electron Transport Studies, Fresh (coupled) mitochondrial Polarography
* Resting Metabolic Rate Study

{We've been told by the Neuro that all of my cardiovascular issues can be something related to Logen. It can just now be showing up as "adult onset" in me. If Logen does test positive, I belive I would be tested as well as Parker and possibly Adam- the reason Adam may not be has to do with the way the mitochondria are passed on. I'm not sure what would be a good thing here. We just want answers for everything thats happening, medically, that no doctor has been able to explain!}

Another hang up is travel on the 4th. I'm a little afraid to fly on that holiday. Call me crazy! ;-) I'm excited about this and want to get the testing done ASAP bc the results will take around 3 months to come back. Rrrrr! I hope it all works out and we can get it done next week. I am going to contact Angel Flights and see what they can do as well. Tickets from here to there are around 900 bucks a person! Driving time is about 13 hours if we just drove without stops or traffic. I hear other parents laughing out there! Like that would ever happen, 'eh?!

Teaser Pics

I have several pictures to upload here. I mean LOTS! And, since I have a fairly large homework assignment due in 3 hours and I'm not half way done, what better thing to do that upload a few pictures!

Mr Logen in his Easter outfit (with my Dad's dog, Buddy)
Mr Parker in his Easter outfit (He's thrilled, you can't tell?!)

Prayers Tomorrow, Please!

I suppose this one is to be more of a vent. Or a prayer request. I'm just not sure.

We changed my heart meds last week b/c one of the medications. I'm on med 3 and nothing has brought my levels under 100 for an extended period of time or gotten rid of all the lovely things (like allowing me to walk without becoming winded!) like it should. My feet and hands have started tingling and feeling numb. My toes also started turning a lovely shade or purply-blue. The blue thing has happened on several other occasions and when I asked another doc about it, she'd said it was fine. FINE??! Blue toes aren't fine....

So, when I called my EP the nurse said, "come on in now". I went in, the doc looked at my toes- saw that they are blue and ordered an ABI to be done then. The 'people' came in and did my ABI (which hurt in one leg... as she warned. You wouldn't think just taking a pressure would be painful). I'm cutting out details here as I have a homework assignment due in a few hours. I was sent to check out and be on my way- they were going to call with the results.

I kinda freaked when the nurse caught up with me and said "I'm glad I caught you, we are trying to get your insurance to pre-auth a MRI and MRA now, can you just sit in the waiting room?" Um... ok. Flip out. So, I sat there and text my mom and was to the point on little water droplets in my eyes. The nurse came back out and just had me come back there b/c one of the nurses had the insurance on the phone and one had central scheduling on the line. My ABI ended up being .94 and 1.00. I was told that anything below 1 is abnormal. Anything below .95 is "significant narrowing of one or more veins in one or both legs." My Doc spoke with another Doc while I was there, we didn't get the test scheduled for that day b/c it's a 3 to 4 hour deal. And, the machine wasn't open. So, I go in at 2pm tomorrow.

Conclusion: the blood is not circulating to (and through) my legs/feet like it should be. We are going to figure out why. So, Dr B says. This can be related to my heart thing or not. We don't know.

I do NOT fit in the "approriate categories for any of this stuff. I am young, never smoked, I don't do drugs, or drink (well... not like they are talking!), my BMI is perfect... it just doesn't add up. And, my Doc says that. "This happens to 80 year olds, not people like you". Yes... he said that!

Anyway... I get to be in a tiny space for a while tomorrow and I'm just a little concerned about everything going on. So, please keep our family in your prayers. I had a test today and yesterday. And, still working on all of Logen's stuff. And, it's just really overwhelming!!!!

Back In School We All Go

If you didn't already know- I'm in summer school. I'm trying to "bust out" 9 credit hours in 5 weeks. I have 4 weeks left. I wake up around 4:30 am and leave my house by 6:15. I'm done with class around 2 pm each day. I get to see my kids by 3:30ish. And by about 4 pm, I'm about exhausted and can't think straight. Please don't attempt to get me to remember anything important between the hours of 4 pm and bedtime b/c I don't remember it.

Logen is also in "Extended year session" aka summer school until July 2.
Parker has returned to a new daycare (he was 'removed' from the other... can't remember if I blogged this?!) and is doing well. They put him in with the older kiddos and his speech is improving. He's minding his manners nicely! Now, when he comes home.... oh, thats a different story. But, the poor little guy has to get up so early- so we cut the boys some slack there.

I am taking Exercise Physiology, Seminar of Exercise Science, and Motor Development. I had my first test at 7:30 this morning. I have another test tomorrow in another course.

Idiot Geneticist

Here's the re-cap from our April 10 appt.

This guy is an idiot. I will be writing to whoever I need to about this ding bat.
We walked in pretending we knew nothing more than at our last appt with "Idiot" (my nickname for him) in January. We asked him what his next step would be in finding a Dx for Logen. He said a blood test for Mitochondrial "stuff". We said ok, explain. He blah, blah, blahed. We half listened- already hearing the cons and pros of the biopsy and blood testing from Dr B in St Louis. And, as you all know by now- we trust StL with everything b/c they haven't screwed up.

So, interesting part happens. He says this is the LAST step for Logen. IF this blood work comes back normal, then we are done. There is no more testing. This is it, end of the road.

I sat up and said, "Well Dr Idiot- Have you heard of Dr Shoffner?"
Dr Idiot: Hmmm. Yes. (puzzled look. crap! How do you know about him?!)
Me: Would you consider sending Logen to him for a muscle biopsy?
Dr Idiot: Well, I don't really think that would be necessary if the blood work is normal
Me: From what I have been told and researched myself, the blood tests can be wrong. I think it would be best to get accurate results so we can begin treatment, if possible.
Dr Idiot: (Another oh crap look! This mom may actually know what she's talking about. And, he just sits there like a big dufus.)

I'm not kidding- he wraps it up by TELLING me we will draw the labs and he will see us soon. I'm like, uh- WHAT?! I went ahead with the labs, b/c IF they show something- then, ok- we may have an answer sooner (7-8 weeks). But, I really DOUBT we drive 4 hours to see this guy again. Horrible. And, how can you tell a family that this is the end of the road for them? It's obviously NOT. Had we not had the knowledge we do and not been to StL, then we wouldn't have known about Shoffner. There are other familes out there trusting this man. And, I feel he's incompetant. He was arrogant. He walked in saying he was the best there is. And, he is clearly NOT. He told us this the last time we saw him as well. I should have taken Logen and ran quickly then, but I gave him a 2nd chance.

So, there's part one of drama from those appts. Crap! Total Crap. I'm going to bed now. I'll be back soon!

PS: the short 1-2 line posts are via text. Thats why they are short. :)

Another Family Loss

We've had alot going on in the last weeks. We had a few appts last Friday (April 10th) at Children's (not St Louis, our "local" 4 hour away hosp). So, we decided we would take the weekend to spend with my family- who lives about an hour away.

Thursday night (our 5th anniversary) was hell. The entire drive was literally spent driving through hail and dodging tornados. We spent Friday night with my Grandma and Grandpa. Saturday we headed to Dad's. I got a call I missed from him on our way.Then a text from my big sis who said to come there b/c Dad & Liz had left. Long story short- my Uncle died. He was dx'd with lung cancer over spring break (about 2 weeks ago). He had begun chemo and radiation.

My Uncle left behind a young daughter, Dawn. My Dad & Liz have legal guardianship over her.

Dawn NEEDS your prayers. She seems to be ok, but my littlest sis said she's good at putting on a "show". D lost her mother in January (she was shot). And, now her father. D's life has been full of tragedy. Her mother used to do some pretty bad things, such as locking her in monkey cages. I just ask that you say some prayers for this sweet child.

We had to drive back on Sunday after church b/c Adam had to work- he's not getting paid for the time off, so it's been a challenge. I drove back down Wednesday morning, attended the funeral and drove home. Let me tell you that 8+ hours in a car and a funeral in 1 day is very difficult. I didn't get home until after 1:30am.

My Aunt Pam was at the funeral (she was the aunt that lost her spouse {Uncle Stevie} in Sept). She hugged my sisters and I am said, "It's just not fair you girls have had to lose 2 uncles like this in such a short time." And, she nearly lost it. Brings back memories. It's still not settled that Uncle Stevie is gone.

My Dad caught me in the kitchen alone that Saturday night after Clark passed. He said, "Aren't you glad you aren't here for my funeral?" I looked at my dad like WTH? Did you relly say that. Then he continued with "you all will not need to cry and grieve for me when I'm gone b/c I will be with the Lord. Very happy." I am still bothered by this.

I will update on Logen's appts last week and the rest of our lives. I have figured out how to update from my phone (using text, so my character limit is 160). I think I will add twitter.

Continue prayers for Logen as well. He's been throwing up his pediasure this week. Not good.

Busy, Busy!

I am working on putting together a flyer for Logen. Putting his 5 years of life (and testing) into 2 paragraphs isn't an easy task. I have to get this done asap so we can begin with posting them/handing out!

I will go to banks tomorrow to set up a donation account. I am also going to talk to our tax lady. A few Wal-Mart vendors told us they need a tax ID number inorder to make donations (of either product or of monetary value)

I will be setting up a blog for just Logen. I am still going to keep my blog up to date. I will most likely post the same here an there, but will keep the emotions at bay on his blog. It will be factual. It will be the site listed on the flyers, where people that are interested can go to learn more about my little man.

I'm not dropping any classes. I've had many papers due in the last week and it's really hard to get done. I'm not on the "school track" right now. I haven't gone to one class since before St Louis, and I will email tomorrow and beg for forgiveness. I know this is bad.

Parker was sick (and I am not 100% convinced it's gone). I took him to the Dr yesterday, by the time we got there his temp was 104.3! We did a flu swab and a strep swab- both negative. His ears looked ok, but Parker kept jerking so he wasn't sure they weren't a little infected. The Dr gave him an antibiotic- he's not had a temp since a few hours after starting it, so maybe it was something bacterial?!

Logen doesn't have the flu anymore, but he's still snotty. Maybe it's allergies (or sinus stuff). He's not eating. I mean, way worse than he was with just the Keppra. He's now on 2 meds with decreased appetite, so this is to be expeted. I can't wait for him to be off the Keppra completely. The Topamax seems to be doing the job, unless we are in the honey-moon phase. Keep your fingers crossed!!!!

Working on getting medical records gathered.

Logen goes in for his thyroid labs Thursday.

We head to our local children's hosp (4 hours south) Thursday night after Adam gets off work (Also our 5 year Anniversary!) Logen sees the Endocrinologist and geneticist. I do not think we will learn anything, I have not heard vry many good things about the E, however we have had the appt since the beginning of Decemeber- so we are going to go.

Thank you guys for your continued prayers!! We are so blessed!

Neuro Center

Deep Breath. Ok. Go!

Logen saw Dr Brunstrom yesterday. Dr B and her staff spent a good 4 hours with us. They are remarkable.

1) The "tumor" on Logen's leg was not all removed. She suggests a plastic surgeon remove he rest of the tumor and fix the scar on his leg, he can make it nearly invisable. We knew shortly after the bandage removed that it still did not look right. Once again, there goes my faith in our local Children's hosp. A few pages in Logen's medical chart were removed before they were sent to us. Also fishy.

2) We are going to order a Mckie hand splint with a supinator strap for Logen's left hand. This will help keep his thumb out. Insurance won't pay for it and neither will medicaid- so it's an out of pocket expense. He won't wear it all the time. We will put it on him when he's working (coloring, puzzles, shape sorting, etc)

3) Repeat Swallow Study, done in specific ways. Once it gets closer to time for the study- I will post on this.

4) Growth: he's falling off the charts. No growth has been made since she began seeing him in 2007. We will check his thyroid functions. However, this can also be resulting from a mitochondrial disorder.

5) And for the big stuff.

* She's referring us to John M Shoffner in Atlanta, GA for a fresh muscle biopsy. While there he will undergo more extensive testing as well- a spinal tap, amino acids levels, metabolic functions, genetic testing, etc. The lost of testing they do is long. Check out their website. Wow.

* Dr S will not see us until I have every medical record on Logen from birth to now. Our hosp is not cooperating with me so far. Our ped's office has also called and asked for the EEG on disk. We keep getting told it's to large to copy. They won't release the report either. And, apparently nobody knows anything about the missing pages in his medical history.

* We are looking at possible Mitchondral disorders/diseases now.
* There are many precautions they gave us.
* avoid prolonged fasting. She said not to let Logen go any longer than 8-10 hours w/o food. This means waking him up if he's sleeping.
* avoid extreme exhaustion
* avoid overheating
* all of the above can lead to brain damage if it is mitochondrial

* We are limited in medications for seizure control b/c of the way the body processes the meds. Mito disorder + certain meds = bad!

* Once we do the testing, results for the biopsy take about 3 months to come back. We can have the spinal tap results in 2-3 weeks.

* If we do not get Logen in to see Dr S in the next 3 months, we need to do the spinal tap before hand. We need to eval his CSF neurotransmitters and look for a cerebral folate deficiency. If he has a deficiency a medication can be given to fix! Dr B has seen major improvements with the med! IF we do the testing here, it will take about a month to get back.


ASKING FOR HELP!

* Just to do the testing with Dr S is $20,000.00+. Medicaid will not cover this b/c it's out of state. I am checking into our insurance. The minimum we would pay is 30% of all costs. We also need to get there (16-18 hours away).

* I need ideas on fund raisers. Anything you can come up with be so helpful. Any way you can think of to help us raise money for the testing, we appreciate!

* We also need prayer warriors!!!!! And lots of them! :)

Epilepsy Center Appointment 3/2009

Logen saw Dr . Thio yesterday. Dr Lui Lin Thio is the Director of the Pediatric Epilepsy Center at SLCH. He is a very knowledgable man who spent an hour and a half with us. He made sure we had all of our questions answered plus some! It was wonderful!!!

This is what we learned about Logen regarding sezures:

* We moved from a "seizure disorder" diagnosis to an "epilepsy" diagnosis

* Multiple seizure types- tonic/clonic, myoclonic, and partial

* His seizures are generalized {best he can tell}- meaning they do not start in one area of the brain (those are focalized seizures)

* Dr Thio *thinks* Logen may have "Medically Intractable Epilepsy" meaning medications may not control Logen seizures. He's had 2 drug failures so far. We are limited in medications we can use (above post)

* Possible candidate for Epilepsy surgery- however, since Logen's seizures are not focalized, the surgery may not happen. He considers this a possiblity b/c of the extensive presurgical evaluation. We may do the eval, but the surgery is not likely.

* Vagus Nerve Stimulation (click the name for its description)

* We will increase his Topamax to 15mg, 2x/day. We will begin weaning Keppra soon. Hopefully we can start that in 1 week. It will depend on how Logen reacts to the Topamax.

Missouri Bound!

It's snowing! It was 70+ earlier in the week and it's snowing!!!!!! Crazy weather in the south.

We've been watching road conditions- most say "travel only if absolutely necessary". But, we had 70 degree weather earlier in the week, so the roads cannot be that bad. I think we are going to try to truck to Springfield, MO tonight. They have an AWESOME resturant where they throw rolls at you :) Good southern fried food. Yum. And, Bass Pro Shop. How could we make this trip without stopping there? I could- Adam could not.

From S'field we will be around 4 hours from St Louis (give or take), so tomorrows drive shouldn't be to bad. Monday's weather looks the best- the day we will be in the hospital all day long! Go figure. And, rain Tuesday! The day we drive home. Yippeeee!

I will update as I can. I am on Facebook and you may get more out of my "status updates" b/c I can do those from my phone. As well as pictures. I can upload those instantly. If I'm not your friend, add me :) My email is jklduncan@yahoo.com I think you can add me that way.

Wish us luck!

Our house sitters promised not to pull pranks on us this go around! haha (I posted pictures when we got home from Florida last August)

YAY! An Added Appointment.

St Louis called this morning and they were able to get Logen in to see the Epilepsy specialist right before we see Dr B! I am very excited about this. They said they had to go straight to the Dr and presented Log's case and he said, "Yes. I want to see him. Put him down at 1." YAY!!!!!!!!! We are excited!!!

I am also waiting for the nurse to call me back regarding his meds. He's been on 15mg of Topamax for 1 week now. Since he's been ill, I'm not sure what to think of it. I can't say we've seen an increase in seizures - but we never do when he's ill - so? Guess we go from here. We will begin to taper off of his Keppra (another Yay!) I hate that stuff!!!!!!!

Logen's Got The Flu

We are on day 5 of Type A Influenze (The Flu!) and an ear infection.... He's not had a fever in 24 hours, but his cough is NASTY and he's still not eating. :(

For some reason, his seizures do not increase when he's ill. This should be yet another clue for whatever Logen has b/c this is NOT typical!!!! Right?

Looking forward to St Louis in a few days. Hoping we learn valuable info!!! And, Adam wants to go to Cabella's so bad he can taste it. A few hours in a hunting store. Yea for Mom. Oh, I dread it!

Logen Update 3/23

Things are still not great. We started a new med for seizures last week. He's now taking Keppra 2x a day and Topamax once a day for them. I am suppose to call St Louis tomorrow to see where to go next. We are going to be weaning from the Keppra and upping the Topamax slowly. We go to St Louis very soon, I am hoping (as much as I want Logen to get out of this funk) that he stays doing poorly for the next week so that the neuro can see this.

This is the 2nd week in a row that the OT has said his facial muscles are VERY tight. He hasn't eatten much since Thursday. Today, half a blueberry muffin and a few bites of oatmeal. Minimal food. Which, is not helping with the weight gain area. We are pumping him full of pediasure trying our best to sneak in calories where we can. He started running a fever, green snot, and a nasty cough (that can't be suppressed with RX cough med). I am taking him to the ped tomorrow morning, when I called today at 4 we weren't able to get in. He's not sleeping well. He's still tripping and falling on nothing. He seems very weak and tired. Which, could be from lack of food- but I think there's something more there that we are missing. His drooling has increased. I keep waiting for a major seizure that we see with convulsions, but haven't seen anything yet.

Please, Please, Please keep Mr Logen in your prayers.