Splendid Mayhem: Parker's Sick

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Friday, December 7, 2007

Parker's Sick

Took Parker to the Dr this morning, he's got croup. Nice! The poor kiddo has been battling snot for the last 2 weeks. He's now on Orapred (a steriod) which makes the kiddo nuts (and me too!).

He may also have Echsema (I can't spell this word, I hope you get what I'm saying). Dr told us to stop using Johnson's baby wash. It apparently can strip the paint off of a car?! She gave us a sample of a lotion to try and a coupon (how thoughtful) for it. We will also throw out our J & J and buy Aveeno.

Parker weiged in at 19.6 lbs this morning! Woohooo my 13 month old is almost 20 lbs!! He has stood on his own 2x today! For a total of 30 seconds each time! He's beginning to get interested in pushing his walker thing around, although he stays in the bedroom on the carpet. The wood floor is too dangerous. Right now, he's pushing Logen's kiddie table chair around the kitchen. Silly boy!

1 comment:

Trish ~CnJ's Mommy~December 10, 2007 at 3:18 PM
Oh no! How I hate orapred (prednisone) Jacob just got off it 11 days ago. (see it even makes you count!! LOL) WTG on the standing...I hope he's running around in no time!
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