Logen is DESPERATE for your prayers. Pray blog family, PLEASE pray. Just grab this code and add it to your blog (html gadget) so you can help us spread the word! Thanks! Pray for Logen

A sincere THANK YOU to all of you who have added this to your blog! And, to Anelys for creating such a cute blinkie!!

Tuesday, March 31, 2009

Epilepsy Center Appointment 3/2009

Logen saw Dr . Thio yesterday. Dr Lui Lin Thio is the Director of the Pediatric Epilepsy Center at SLCH. He is a very knowledgable man who spent an hour and a half with us. He made sure we had all of our questions answered plus some! It was wonderful!!!

This is what we learned about Logen regarding sezures:

* We moved from a "seizure disorder" diagnosis to an "epilepsy" diagnosis

* Multiple seizure types- tonic/clonic, myoclonic, and partial

* His seizures are generalized {best he can tell}- meaning they do not start in one area of the brain (those are focalized seizures)

* Dr Thio *thinks* Logen may have "Medically Intractable Epilepsy" meaning medications may not control Logen seizures. He's had 2 drug failures so far. We are limited in medications we can use (above post)

* Possible candidate for Epilepsy surgery- however, since Logen's seizures are not focalized, the surgery may not happen. He considers this a possiblity b/c of the extensive presurgical evaluation. We may do the eval, but the surgery is not likely.

* Vagus Nerve Stimulation (click the name for its description)

* We will increase his Topamax to 15mg, 2x/day. We will begin weaning Keppra soon. Hopefully we can start that in 1 week. It will depend on how Logen reacts to the Topamax.

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1 comment:

  1. Jess, I will continue to keep all of you in my prayers. Hugs!


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