Logen Update 3/23

Things are still not great. We started a new med for seizures last week. He's now taking Keppra 2x a day and Topamax once a day for them. I am suppose to call St Louis tomorrow to see where to go next. We are going to be weaning from the Keppra and upping the Topamax slowly. We go to St Louis very soon, I am hoping (as much as I want Logen to get out of this funk) that he stays doing poorly for the next week so that the neuro can see this.

This is the 2nd week in a row that the OT has said his facial muscles are VERY tight. He hasn't eatten much since Thursday. Today, half a blueberry muffin and a few bites of oatmeal. Minimal food. Which, is not helping with the weight gain area. We are pumping him full of pediasure trying our best to sneak in calories where we can. He started running a fever, green snot, and a nasty cough (that can't be suppressed with RX cough med). I am taking him to the ped tomorrow morning, when I called today at 4 we weren't able to get in. He's not sleeping well. He's still tripping and falling on nothing. He seems very weak and tired. Which, could be from lack of food- but I think there's something more there that we are missing. His drooling has increased. I keep waiting for a major seizure that we see with convulsions, but haven't seen anything yet.

Please, Please, Please keep Mr Logen in your prayers.