Splendid Mayhem: Logen, 2 Days Post Surgery

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Sunday, January 11, 2009

Logen, 2 Days Post Surgery

He's doing well. Still in pain- he's limping around (so sad to see).

We are relieved the lipoblastoma is off. We will remove the bandages at sponge bath time. I am anxious to see the incision.

Just Prayin' til we get results from path!

4 comments:

DawnJanuary 11, 2009 at 12:37 PM
Woah! What a go lately. So glad to hear he came out of surgery okay and yay for the no on Angelman's. I'm sorry I've gotten behind. I didn't even know that poor Logen had to have surgery. He sure sounds like a tough little guy.

We'll keep praying.
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ErinJanuary 12, 2009 at 2:23 PM
Wow you have had a lot going on lately, just know we are all praying for you and Logen. Keep us posted
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ErinJanuary 13, 2009 at 2:10 AM
Glad the surgery went well.. keeping Logen and the rest of you in my thoughts and prayers and hoping you can get a break!
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3LittleFlowersJanuary 14, 2009 at 8:36 PM
Im so happy that the surgery went well, and I hope he is better by now!!! Praying for you all!!!!

BTW, I have something for you on my blog since forever, but just now I had to chance to come and let you know.... It is on the post from January 4th: http://www.3bloomingbuds.com/2009/01/kreativ-blogger-award-update-and.html
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