Splendid Mayhem: Logen's Pathology Report

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, January 19, 2009

Logen's Pathology Report

The 'tumor' cells/tissue came back consistent with those of a 'typical' Lipoblastoma. Which means.... it's not cancerous!!!!! Yay Logen!

The area is still swollen (or they didn't remove all of the tissue), so the nurse said to watch it over the next week (to 2 weeks). If the swelling doesn't go down by 3 weeks post-surgery, there could be reason for concern. So, for now- we will just watch it.

He was up wrestling, tackling, climbing, etc with kids on Saturday night and by bedtime the poor little guy was really hurting. He's not been as active as he was Saturday night since pre-surgery.

Logen has really been motivated to use his talker (augmentative communication device) lately, for that we are all thrilled!

Only 5-6 more weeks of waiting for results on the genetic tests! Keep Praying!!!

** Camera has been found, on top of the fridge in the garage (it was the only thing on it, so it stuck out). Don't ask me how it got there. I have NO clue! **