Splendid Mayhem: Logen's Schedule This Week

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Sunday, June 3, 2007

Logen's Schedule This Week

Monday:
Preschool in the AM hours
2:45-4 Vital Stim at the Hospital (Lori)
4:30 - 5:30 OT (Tabi)

Tuesday:
10 -12 Preschool
12 - 1 PT (Claudia)
2:30 - 3:30 OT (Tabi)
3:30 - 4:30 Speech (Jenn)

Wednesday:
9:30 - 10:30 OT (Tabi)
11 - 12 Preschool
12 - 1 PT (Claudia)
1 - 3 Preschool
3:30 - 5 Vital Stim @ hosp (Lori)

Thursday:
9:30 - 10:30 OT (Tabi)
11 - 12 Preschool
12 -1 PT (Claudia)
3-4 Speech (Jenn)

Friday:
9:30 - 10:30 PT (Sherri)
11 - 2:15 Preschool
2:45 - 4 Vital Stim @ hosp (Lori)
4:30 - 5:30 OT (Tabi)

** Claudia (The PT) has changed her schedule to 3 days a week for the summer, so on Friday's we will now be seeing Sherri at Tabitha's clinic. We may consider dropping Claudia all together (Logen loves her dearly and she's a wonderful therapist) but, that way all (except, Vital stim) therapies would be done at Tabi's clinic. Which, would eliminate SOOOO much time in the car! I spend atleast 3-4 hours a day in the car getting Logen from one place to another. **

2 comments:

ChrystieJune 3, 2007 at 1:12 PM
Girl, I think all of us CP Mom's need to be praying for one another and these crazy therapy schedules! I know that we didn't necessarily "sign up" for all of this when we became pregnant, but we just love our kids too much to not do everything possible to help them achieve their potential! You are a FABULOUS mom, Jess, for spending so much time in the car! Here's to portable DVD players!
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Andrea "The H family"June 4, 2007 at 11:42 PM
Oh yes....our schedule is right there. I could literally copy and paste your post onto mine! LOL.
Hugs
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