Splendid Mayhem: Vital Stim (6/6/07)

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Thursday, June 7, 2007

Vital Stim (6/6/07)

YesterdayVS session was very productive!! Logen actually ate! He ate nearly an entire Otis Spunkmeyer Blueberry Muffin and 4oz of applesauce! Lori was able to get the machine up to 14 (the highest setting is like 23ish)!!! His norm is 9.5~ he starts getting mad if she goes any higher. I guess he was so wrapped up in eating his yummy treat (I don't offer him "junk" often, and My Momma was the one that bought the muffin) that he didn't notice Lori cranking the machine up. He ate for nearly 30 minutes. He even let Lori feed him a few bites. He's not crazy about letting anybody but Me, Nana, Dad, Tabi (OT), and maybe a few others here and there. So, that alone was a big step :)
After the melt down during VS Monday, yesterday was awesome! I guess I will go buy him another muffin for tomorrow and pray he eats it! (VS is much more productive if you can get the patient to eat and/or drink during the session)

1 comment:

Andrea "The H family"June 11, 2007 at 1:23 PM
hey honey, remind me to tell you about the 'jabby places' in reference to Vital stim when I get back. Had another really good talk with my therapists. At the Mayo now...be back next week.
Hugs
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