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Monday, June 30, 2008

EEG Results...

Suck. Logen IS having seizures. We have suspected it for a while- he's not having the full blown entire body jerking kind (except for the one nearly 2 weeks ago).
Here are a few things we've noted in the past that point to seizure activity that I have somewhat ignored thinking it would all go away. Bad Mom, I know...
* Progress in therapy for a few months, then nothing for a month
* Night waking- blood curdling screaming, I've taken him to the dr for this numerous times, and everytime he checks out healthy.
* Blank stares, can't concentrate or focus for brief periods (1-3 minutes) Doesn't respond to his name, etc. This is the biggest sign of seizure activity!

So, I haven't decided if this is a blessing or not. I mean- if the neuro decides to do meds (and I'm pretty sure she will) we could see MAJOR changes in Logen, right? The St Louis Neuro is out of the office today and tomorrow. So, at the earliest I will hear back from their office on Wednesday. I faxed them the results on Friday. I dislike the waiting game very, very much.

Please says prayers for my sweet Logen. For now, we just wait. There is nothing we can do, but pray. The nurse from the CP Center said that if he has a seizure and it lasts 5 minutes or longer to go to the ER, otherwise- just keep him safe while he seizes.

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6 comments:

  1. Ah, Jess.....prayers going out to all of you!! I'll be thinking of you guys.
    BTW, I'm going to respond to your E-Mail today...I've been soooo busy :)

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  2. Awe Jess, I'm sorry you didn't get better news. But maybe now that you know, he can be treated and won't have any seizure. I wish it was better, he'll been in my prayers today as he is always.

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  3. Oh, Jess! I'll keep all of you in my prayers and will be following along for updates.

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  4. Jess - That stinks. I will continue to think of you and pray for you, Logan and the family. Keep us posted and text if you need to.

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  5. OH hun, I am so sorry you guys are going through this. Joseph had a feiberal(sp) seizure once and I LOST it, so I know I would be a wreck.

    I have done quite a bit of research on seizures, and the meds are 85% affective. I think at first they are VERY tired on them, but then I think you would see an improvement. Seizures are so hard on their little bodies that is probably why he isn't progressing in therapy lately. Keep us posted, I will be thinking and praying for you!

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  6. I'm sorry that your news wasn't better. I hope that they are quick to get any meds figured out. I'll be thinking of you guys and keeping my fingers crossed that he doesn't have another one.

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