Splendid Mayhem: Hello!

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Tuesday, October 28, 2008

Hello!

It's a busy week for us!

* Parker did fan-tab-u-lus Friday. I have a picture to share- this deserves a post on its own.
* Logen was seizure free all weekend long!
* Mr Parker has a hearing test this afternoon (FINGERS CROSSED that all goes well!)
* Logen has been *willingly* using his talker more frequently. Last night he carried it to Adam and asked for milk please. :) Go Logen!!!!
* I *think* I did well on yesterday's French exam
* Parker will be 2 Sunday!!! Where does time go?!

2 comments:

Popcorn HouseOctober 28, 2008 at 11:19 AM
Crossing my fingers too for Parker's hearing test. Can't wait to read about Parker's big day at the school!

I have been praying for Logen so hopefully it is working.....LOL.

Making Jessica's rolls right now. Punched them down waiting for them to rise up again!!!!
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AnonymousOctober 29, 2008 at 10:06 PM
I miss you so much, Jess!! I feel *awful* for not posting/texting as much...PLEASE know you are on my mind & I think of you all often!!
Parker is going to be 2???!!! WTH???? That makes me sad....cause it means my little Mia will be 2 soon too!! I don't want my baby to grow up!!!
Love ya!
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