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Thursday, October 16, 2008

A 9-1-1 Call

Today has been interesting. Interesting.
At 8:04am my phone rang- I missed the call b/c I was dropping Parker off at daycare. At 8:05am I was in the car heading towards my school and listening through 14 voice mails to get to the one Logen's school had just left me (if that tells you anything, I don't listen to voice mails very often)
The lady had said Logen is in the nurses office and they've called 911. Please call them.
I freak. 1st thing that comes to mind: Seizure. Bad one. Tears, why couldn't this have happened when he was near me?!
I regain composure and call them back. She said he was on the school bus - and had been seizing for about 2 minutes before he even got to school. I can't remember if they had phoned ahead to warn them or not- whoever was there to take him took off running to the nurse's office. The nurse immediately gave him diastat (a form of valium administered rectally). This stopped the seizure. They called 911 and then me.
I headed towards his school. Thankful I was still in town (well, the next town over- but my school is a good 40 minutes *atleast* from Logen's school). I turned on my flashers and drove like any paniced mother would.
When I got there the paramedics asked if I wanted them to transport Logen or if I wanted to. I said them. He was still lethargic and really not even holding his own head up. There were several people in the nurses office with Logen. The nurse was holding him and his teacher was standing next to them. The assistant principle, office ladies, and 2 paramedics were there 2.
We got in the ambulance and headed to the hospital. Logen's teacher drove my van to the hospital so I would have it there. I really thought he would have slept on that drive, but he didn't. He was so out of it. He would have been so excited if he had known he was riding in the back of an ambulance. The paramedic riding back there had been to the school the week before to show the fire truck off and remembered Logen. He said he loved it!
When we got to the hospital Logen was still not totally with it. The Dr there called and spoke with his Neuro at the CP Center in St Louis. They said we did the right thing and decided to up his medicine again. He's up to 75mg of Zonegran/AM and 100mg/PM. He was checked over and besides the fact that he'd just had a severe seizure, he looked good. So he was discharged.
We got home and he slept til about 1:30 this afternoon. He cried when he woke up, he tried to walk but was so wobbly. He ate a little oatmeal and was starting to get his normal color back.

I spoke with the CP Cntr nurse this afternoon and she said she'd call me back in the AM about this. It's alarming to me that his seizures are getting worse. Today's seizure was classified as tonic-clonic. Logen has never had this kind before. Nor has he ever had one lasting over 2 minutes. I'm worried about this. Personally I think if they are getting worse- there must be something we are missing. How is it that seizures just pop up at 4.5 years old and become worse as you increase the preventative medicine? I'll post an update when I get one.

The nurse called this afternoon to check on us. I also spoke to Logen's teacher (everybody wanted an update) She said when the bus got to the school this afternoon, they ladies had tears in there eyes-- they were so so worried about Logen.

I am absolutely AMAZED with his school. So far, in every aspect they've gotten a A+.

I missed class yesterday- Parker has a bilateral ear infection. One he's had for about a week we didn't know about. We got numbing ear drops- they looked horrible. He hadn't had a fever- just wasn't sleeping. He still doesn't have all of his front teeth in, I chalked it up to teething. Guess we won't do that again.

Say a prayer for us, would you? It's kinda stressful here!

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7 comments:

  1. I'm sorry you had such an awful day! Sending thoughts and hugs over the oceans. :)

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  2. Sorry for the day you had. Keep us posted, I will be thinking and praying for you guys!

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  3. I am so sorry to hear this. My heart just breaks for you. My son has the Clonic Tonic seizures, and they have lasted up to 20 minutes before. Have they looked into Keppra for him? That seems to work really well(knock on wood) for my son's break thru seizures.

    Take Care,

    Carrie

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  4. I'm sorry! Seizures are never fun! Luckily we've never had it go that far. We're supposed to do the Diastat at 5 minutes and then if it's still not done 5 minutes after that then we call 911. Since getting out of the hospital (a little over 2 years now) he's not had a seizure that bad (though in the hospital he'd have them for as long as half an hour). I'm glad he's doing better now though. Those sure do wipe them out!

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  5. I'm so sorry. It's always something isn't it. I'll be thinking of you and any your boys. Post an update when you can

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  6. Im REALLY sorry!!! I will continue to pray for you guys!!! Will be waiting for an update!

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