Logen is DESPERATE for your prayers. Pray blog family, PLEASE pray. Just grab this code and add it to your blog (html gadget) so you can help us spread the word! Thanks! Pray for Logen

A sincere THANK YOU to all of you who have added this to your blog! And, to Anelys for creating such a cute blinkie!!

Tuesday, August 12, 2008

The Verdict

I spoke with the APN this afternoon- the Neuro wants to increase Logen's Zonegran. He will be getting 25mg in the morning and 50mg in the evening. She said his dose was still pretty low, so he will beable to go up quite a bit if needed. If no seizures, I will call back in 2 weeks. Hopeing I don't have to talk to them again for 14 days!!!

I'm still in awe of the fact that at almost 5 y/o we START having seizures. I know there are alot of you who's child has had them for a while, and are *used* to it, {{kinda- I'm in edit mode and don't get my original point. Seriously, I know you don't really ever become 'used to' something like this. What was I thinking.....?}} Like the fact, that everything else that we hear (that we'd just rather not hear, well just rather not have to have our child going through) I don't want to accept it. I keep thinking, if I don't see it it won't be there. We've had a dx (yet now we aren't so sure, for the last year we've been not so sure) for over 3 years. It's still sinking in. It's hard, and it's even harder for my little man. Blah. It just sucks. Simply stated- It Just Sucks.

Thanks for reading my "non-positive attitude" vent :)

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  1. Oh Jess! big hugs to you. I hope that the meds help to prevent it.

    It has just been one thing after another lately for you. Keep your chin up. I am thinking of you

  2. ((((HUGS)))) I hope the meds help him and let him be a kid.... Will continue to pray for you guys!

  3. Jessica,
    My heart so goes out to you all!! Logen is such a little blessing to me! I love to see him at therapy. Please know that I am here and that I would love to help anyway that I can!! Hang in there my friend!
    Logen and Parker are truly blessed to have you for their mom. Sometimes things do suck and it is tough. Just know that you have people here who are willing to help carry that load!!
    Have a great weekend!!

  4. {{{{HUGS}}}} I know it makes no difference because it doesn't make it any better for Logen but I didn't have my first seizure until I was 21.

  5. Jess,
    Sam is on 75 mg twice a day and he's 33 pounds! It sounds like such a high dose when I read your post and see what they have Logen on... ugh...now I'm freaking out...
    Stay strong...when the seizures are gone, it makes all the difference in the world!


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