Logen is DESPERATE for your prayers. Pray blog family, PLEASE pray. Just grab this code and add it to your blog (html gadget) so you can help us spread the word! Thanks! Pray for Logen

A sincere THANK YOU to all of you who have added this to your blog! And, to Anelys for creating such a cute blinkie!!

Monday, December 8, 2008

Adulthood, What If?

... Many affected people need to live in a residential (adult foster care) group home when their parents are no longer able to care for them.

With children: Support in the home, a contact family or short-time respite care homes may provide valuable relief and rest for the family. The family may also require assistance in coordinating interventions.

With adults: they require continued support from a treatment and training center. They also need special housing, offering assistance in managing daily living skills and organizing activities.

I've looked and researched (I know, I said I wasn't going to do this) every possible syndrome, etc we discussed. EVERY one of them mentioned the above. It's heart breaking.
One of my best friends & I were joking (a few weeks ago) about our children, she'd had a rough day w/behavior, etc. She laughed and said something about 'when my daughter turns 18, she is so on her own!' If it hadn't have been this particular friend (or one of my other friends who have SN kids) I think it would have bothered me. I laughed back and said something like yes, Parker will be too!

How do I keep my sanity through this all? How do I make it ok for everybody? How am I suppose to feel and react? I don't even know. I've cried so many tears I don't think I can cry anymore. I'm becoming numb. And, my wonderful husband is Mr Optimistic. (Thank Jesus for him!!!) I wish I knew how to look at the bright side of everything like he does. And, what about Logen? What about HIM?

And, there's always that question of: What if he doesn't make it to adulthood?

So, we just ask for you to....

Keep On Prayin'

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1 comment:

  1. You come to the point where you go one day at a time, one hour at a time. For me, looking ahead to 2 years from now, 5 or 10 years from now is incomprehensible. Either, he will still be total care but nearly a man, or I won't have him anymore on Earth at all. So, I don't live in denial, but I only go at babysteps and cherish each day. The road I walk has taught me one thing more than any other. To cherish every day, every special moment, every holiday. I don't know what type of disease it is that you are facing, however, I pray that in time your mind and heart will come to a place of living moment by moment.

    big hugs!



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