Splendid Mayhem: The Letter A!

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, December 1, 2008

The Letter A!

Erin sent me a this:
The letter A. I need to name 10 things that start with a letter A.

1) Applesauce, unless you are Parker and then you would say "Ass-e": Logen gets his seizure med mixed in applesauce (100% all natural, no sugar added of course!)

2) Angel: the Guardian ones that help us make it through our day! Or the one on top of our Christmas tree.
3) Airplane, the boys first time on one. Click on the link to view pictures (theres about 8-10). I can't copy & paste them for some reason.

4) Asparagus: 1 of Logen's (& mine) Favorite veggies!

5) Ant: Little bug that always manages to finagle is way into the house during spring. Parker got pretty good at ant squishing in Florida this year!

6) Automobile!!! The boys favorite toys include anything that has wheels! We also spend a great deal of time in our Automobile!

7) Arm: There are 8 arms in the above photo.

8)Animal: There are 3 Animals in his house! I think Monkey would be an appropriate label for my little men.

9)A...: The month Adam & I got married.

10) A...: The month our precious Logen was born. (This picture also says, Yay! We made it through 10 A's)

**If you are interested in blogging a letter- comment & I'll email ya one!