Splendid Mayhem: "It's Just Not Fair...

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Monday, December 15, 2008

"It's Just Not Fair...

... that he has to have so much to help his little body work right." A, Logen's Daddy

Logen was up with some MAJOR constipation tonight. It lasted over an hour before even a suppository gave him relief. He's on Miralax daily- but it must be time for a dose increase. I wonder if the pediasure has any role in this? He was just pitiful. He couldn't lay still, his little face was all scrunched up, he was crying, his tummy was tight- and nothing we were doing was helping. It's awful when you watch your baby hurt and there is nothing you are able to do to comfort them!!! I know every Momma out there will agree with me!

1 comment:

MelindaJanuary 5, 2009 at 1:44 AM
When Bri was on Pediasure, if we didn't get the kind with added fiber, she would get constipated, too. I recommend getting the one with fiber.
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