Splendid Mayhem: Another Prayer Request

Welcome To Holland

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Thursday, December 11, 2008

Another Prayer Request

I hope I'm not pushing it by asking for more prayers :P

A very dear friend, Melissa (Joshie & Mia's Mom to those BBC Moms reading) lost her Mom 7 years ago, tomorrow. I cannot imagine. Please keep her in your prayers. Thanks!

** Logen hasn't had more than 1-2 seizures per day in over 2wks... but I am HATING the Keppra. Still not eating & the PT noticed some 'not so great' changes today. Will update after tomorrow's French Final. **

KEEP ON PRAYIN' FOR LOGEN

8 comments:

momtoablessingDecember 11, 2008 at 11:07 PM
I will keep logen in my prayers still Audrianna managed to stay out of the hospital the neurologist started her on lamicatal for her seizures she ended up having 2 at school today this is the 3rd medicine we have tried in a year or 2 shes only had seizures for I want to say 2 years. And as for the not eatting they told us its behavioral.
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MelissaDecember 11, 2008 at 11:38 PM
How sweet are you, Jess??!!
Love you too & always praying!!
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ErinDecember 12, 2008 at 3:45 PM
I am still praying
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UnknownDecember 12, 2008 at 5:40 PM
Continuing to pray for Logen and for you. Blessing to you all.
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BarbaraDecember 12, 2008 at 7:52 PM
I'm thinking of you guys and will be checking back often for updates.
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3LittleFlowersDecember 13, 2008 at 4:22 PM
Hun... I will love to make a blinkie for you for people to put on their blogs saying that they are praying for Logen... If you want me to do it, just tell me to which post should the blinkie be linked to (it has to be one explaining the situation why you are asking for prayers, or simply create one explaining it)...

Let me know... 3littleflowers at gmail dot com
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KieraDecember 14, 2008 at 2:10 AM
Logen continues to be in my prayers! I hope things are OK.

On a side note, I hope your French final went well. I am so impressed with your strength and determination. School is stressful in and of itself and to be continuing while all of this is going on is truly amazing. You are an incredible Mom and an amazing woman!

Are you almost done for the semester so you have one less thing to worry about?
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Ellen SeidmanDecember 14, 2008 at 1:42 PM
Hi. I just found this blog, and will add Logen t my prayers. He is adorable, and I desperately hope the doctors will pin things down soon. I have a little boy with cp who I blog about, we knew from birth he would have cp, and he is doing OK for himself.

All the best to you, your family and your little guy...

Ellen
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