I'm a Mom, Wife, & (more than full time) College Student. My family is Dairy Free (for the most part) and Gluten Free (or in the transition phase for Logen, with dysphasia it's more difficult). Logen was diagnosed with Cerebral Palsy in 2005. The Dx was taken away in 12/2008. He is undergoing many tests to find the correct Dx, our "most probable" is Mitochondrial Disease along with Epilepsy and CP. Parker came into the world at 34 weeks and besides needing a little OT for sensory issues & behavior and having food allergies- he's developing well.
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this...... When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting. After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland." "Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy." But there's been a change in the flight plan. They've landed in Holland and there you must stay. The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place. So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met. It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts. But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned." And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss. But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Jessica & Abbey (3/08)
Logen "Playing with flour" 6/05
Quotes
Laundry
Boys
A "Wirey" Parker, NICU
Parker & Mommy
Birthday Counter
"Babydoll" Logen 7/05
Logen is DESPERATE for your prayers. Pray blog family, PLEASE pray. Just grab this code and add it to your blog (html gadget) so you can help us spread the word! Thanks!
A sincere THANK YOU to all of you who have added this to your blog! And, to Anelys for creating such a cute blinkie!!
Homeostasis
-
ho·me·o·sta·sis
ˌhōmēəˈstāsəs/
*noun*
1. the tendency toward a relatively stable equilibrium between
interdependent elements, especially as maintain...
Blogging madness: Updates on the way!!
-
When I first started this blog, I always said that this was going to be
like a journal for my girls to read when they are older. My life used to
be an ope...
Foodies Weekend
-
Jack the King Apple Crumble Maker... Well it was a rainy stay inside sort
of week end, so we did, and we ate...a lot...
Jack had a sleep over at a mate'...
Sam Starts SPEECH!
-
Yes, I am excited about Sam starting speech. Since middle of last year, we
noticed that Sam was not as clear as we would like him to be. Joseph has
bee...
Moving!!!
-
FYI-I FINAAAAALLLLLLYYYYYYY dumped all my blogs into one big fat one:) I
know I know I know... bout dang time!!!
So, please feel free to hop over to http:/...
Christmas 2010
-
This is a bit late but it seems like everything I do lately is late!
Hopefully I'll get caught up with time soon and finally mail the rest of
the Christmas...
2010 Goals: April Check-off
-
I completely missed a month, so here is the update of where we are. The end
of March and early April turned out to be focused on health and family.
Even wi...
Need help with Equipment
-
=) I finally updated my blog and I am in desperate need of your help! Nicky
is suppose to be getting his wheelchair and walker ordered this week, these
wil...
The school systems
-
So Sarah and I recently had the joy of learning about what happens when
little Avery and Sean turn 3.
No more EI no more unlimited amount of therapy they a...
Mia's future husband is soooo stinkin' cute!!!!
ReplyDelete